In-vivo and Ex-vivo Delivery Systems
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30/09/2024
Improving standards of care for people living with blood cancer
How Do Viruses Make Us Sick?
Created in partnership with Blood Cancer UK, individuals living with blood cancer and other stakeholders, our 'Patient Charter' and policy 'Briefing' documents provide insights and guidance on how we can work together to better support blood cancer patients.
Blood cancer is the fifth most common cancer in the UK, with over 41,000 new diagnoses every year, and 250,000 people living with blood cancer in the UK.1 There are more than 100 different types of blood cancer, yet awareness and understanding about the condition is much lower than other types of cancer.1 It is therefore important that we spotlight this hidden cancer and make it more visible.
These documents provide guidance and insight on how policymakers, regulators, and healthcare providers can work together to deliver better care and support. By prioritising the principles outlined in the Briefing and utilising the information in the Patient Charter, individuals with blood cancer can have a better chance of living well with the disease.
The Patient Charter, aims to empower individuals with blood cancer by providing them with information about what to expect from their care and support. It encourages patients to seek the care and support they need at every stage of their battle with blood cancer.
If you are a blood cancer patient or carer seeking advise, please download the charter using the link below:
Following extensive engagement with patients and patient organisations, the Briefing highlights six standardised principles for policymakers and regulators to act upon to improve standards of care and outcomes in blood cancer, recognising the current capacity and resource challenges facing the NHS workforce and its cancer services.
If you are a policymaker or regulator, download the Briefing below:
The six priority areas identified in the Briefing, which have equal importance, are:
Improving blood cancer awareness, to enhance timely diagnosis and access to support
Encourage shared decision making, enabling patients to make informed decisions about their care
Holistic and personalised care that considers individuals demographics and circumstances
Equitable access to treatment and support, including tailored information for individuals
Ensuring continuity in care and communication through an assigned point of contact
Expanding research and clinical trials, improving awareness, access, investment and timelines
We hope these documents serve as a valuable resource for policymakers, regulators, healthcare providers, and individuals living with blood cancer. Through collaboration, together we believe we can make a positive impact on the lives of those affected by blood cancer.
If you would like to explore further possibilities or discuss how we can implement these principles, please contact us.
References
Blood Cancer UK. Blood cancer facts. Accessed August 2024.